The ANZDATA Registry is a clinical quality registry that includes all people receiving long term dialysis and kidney transplantation across Australia and New Zealand. Based in Adelaide at the SA Health and Medical Research Institute, it has core roles in health service planning, safety and quality and clinical research. For many years it has produced a range of data and reports including Annual Reports, centre-specific safety & quality reports together with a variety of bespoke outputs.
In recent years the activities of the Registry have expanded substantially. These include the implementation of Registry-based randomised clinical trials; development of geospatial analytic capacity; COVID related data collections; an expanded suite of quality indicators and associated reports, and inclusion of consumers across the spectrum from data collection and analysis to report writing.
This presentation will highlight key trends in incidence and treatment patterns for people receiving dialysis and kidney transplantation across Australia and New Zealand, and highlight some key challenges. These will include variation in incidence and treatment patterns across regions, and across key demographic groups. Future developments in ANZDATA will be discussed, including the ongoing development of interfaces with other data sources (including electronic medical records) and patient-reported outcomes.