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ADPKD / PKD Webinar

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Topic
ADPKD / PKD Webinar
Start Date
29 April 2021
End Date
29 April 2021
Start Time
6.30pm AEST
End Time
8.00pm AEST
Venue
Webinar - Via your PC or mobile device
Contact Name
Renal Society of Australasia
Contact Phone
1300 941 480
Contact Email
membership@renalsociety.org
Who Can Register?
Anyone

ADPKD in 2021 – how we got here, what we have done, and what is on the horizon. This webinar is proudly sponsored by Otsuka Australia Pharmaceutical and PKD Australia


Date

Thursday, 29 April 2021

Time

6.30pm - 8.00pm AEST / 8.30pm - 10.00pm NZST

Click here to check your local time

Learning Objectives

  • Understanding ADPKD
  • Genetic screening for ADPKD
  • Management for ADPKD
  • Future of care for people with ADPKD

Presenters 

Prof Andrew Mallett

Professor Andrew Mallett  

MBBS MMed PhD CF AFRACMA FASN FRACP

Professor Mallett leads the first and largest renal genetics clinical service and program in Australia.

Having been a Churchill Fellow and an RACP Foundation Jacquot Research Establishment Fellow, he has a strongly emerging profile in the clinical care and research of inherited kidney disease and nephrogenetics nationally, regionally and internationally. The clinical and translational research he is undertaking includes the epidemiology of inherited kidney diseases, subspecialist models of clinical care for these diseases, and new and novel genetic sequencing for nephrogenetic diagnosis and discovery including approaches to functional validation.

Currently, Professor in the College of Medicine (James Cook University), Clinical Fellow (Institute for Molecular Bioscience, The University of Queensland), and Co-Lead Renal Genetics Program (Genetic Health Queensland), Prof Mallett is also National Director of the KidGen Collaborative, Lead for two Rare Disease Flagships (Australian Genomics Health Alliance), Director of Clinical Research and Nephrologist (Townsville University Hospital), and previously visiting fellow at the Cambridge Institute for Medical Research and Addenbrooke’s Hospital, The University of Cambridge. He is committed to improving the understanding of inherited kidney disease as well as the clinical care and outcomes of Australians affected by it.

Janine Creenaune

Janice Creenaune

Janice Creenaune was officially diagnosed with PKD around 20 years ago after she had her three children and at the time “knew there was no cure and very little (she) could do about it”.

Her mother had PKD. Her sisters had PKD and her daughter has PKD. In her family, through the generations, it was always known as the ‘Women’s disease’.

Host & Q&A Facilitator

Robert Gardos

Robert Gardos

Board Chair, PKD Australia

Robert Gardos, graduated as a Textile Chemist and then spent his whole working life in the textile industry. In retirement he learnt that his son's primary school friend’s family had an inherited kidney disease, Autosomal Dominant Polycystic Kidney Disease, that has no cure.

In 2014 Robert co-founded PKD Australia with 2 affected families with aim to educate about, advocate for families with and raise money to fund research into a cure for PKD.

Location

Your computer or mobile device

Connection details

Details will be provided to registrants via email prior to the live broadcast.  PS -- Make sure to check your junk or spam inbox.

Cost

RSA Members - FREE of Charge 

Non-Members - $15.00 inc. GST

Not a RSA member? Join now!

CPD

1 hour

 

RSA wish to thank our corporate sponsors for their generosity in supporting this event